I watched the Steve Gleason documentary yesterday. I purchased it awhile ago but didn't think the holidays would be a good time for me to watch it. I loved it.
You know how when you are first married and suddenly all the movies of married couples are just funnier. Or when you have your first child and now all the programs of babies seem funnier. It's all just where you are in your life that bring more to the art you are experiencing. Who would have ever thought that a documentary of ALS would make me laugh? It also made me cry but that, I expected. This film is just so very real. There was one part where his wife was in a separate bed from him and he is typing out his disappointment in something she didn't do and it was like I was hearing Mike all over again. To hear her say "ok" without even looking up just spoke volumes to me.
There aren't direct parallels in their relationship and mine with Mike but when it comes to how the ALS affected them, that's when I felt connected.
Living with ALS even as a caregiver is lonely. Very few people really grasp what your lives are like and now I am watching this and thinking...... Wow, it wasn't just us. Of course, with Steve being an NFL football player I assume they had resources that Mike did not since his football was college. Their outings showed a lot of people helping. I would have given anything to just have someone sit next to Mike so I could take a shower some days.
I highly recommend watching this movie, but to tell the truth, it may not mean as much to you as it did to me. Just like all the other examples I gave of why things speak to you, this one might not. But if you are interested in a window view of the life of someone living with ALS, this movie gives you the seat of the house.
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